For Potential Research Participants

Information for Potential Research Participants


Q:  Where can I find out about research studies being conducted in my area?


A:  At Clinicaltrials.gov.  ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.


Q:  Are you, a family member, or friend thinking about taking part in a research study?

A:  In research involving human subjects, the Office of Human Research Oversight (OHRO) provides researchers with the support that is necessary to ensure that the protection of the subject is at the center of research practices at UICOM-P. 
 
A key component of the subject protections program is the review of research studies by independent boards, known as Institutional Review Boards (IRBs).  These boards are made up of faculty members, scientists, non-scientists, physicians, nurses, and members of the local community who have no connection with the university. 

The IRB must determine that the research plan is well developed, will provide an answer to a specific question, and that there are proper safeguards in place to protect the rights, safety and well-being of study participants.  The IRB also makes sure that research subjects rights and OHRO contact information are explained in every informed consent document. The IRB receives updates on the progress of the research at specific intervals to ensure that the study is being carried out as planned and that any safety concerns are addressed in a timely and proper manner.

There are  a number of on file resources that you may find helpful in understanding research, whether participation in research is right for you, and questions you may want to consider when deciding whether to take part in a research study.

Office of Human Research Protections

Becoming a Research Volunteer - It's Your Decision

Ser Voluntario en Estudios Clinicos - Es Su Decision

Questions to Ask

U.S. Food and Drug Administration (FDA)

Basic Questions and Answers about Clinical Trials

Become a Research Volunteer

National Institutes of Health

NIH Clinical Research Trials and You

Q:  Are you thinking about enrolling your child in a research study?

A:  R
esearchers are working on studies that involve children, and the UICOM-P IRB ensures that children receive special protections.

Visit the following links and web addresses for information about pediatric research and protections specific to children participating in research studies.

Parent's Guide to Medical Research

Drug Research and Children (FDA)

Children's Assent to Clinical Trial Participation (NCI)

Special Protections for Children as Research Subjects

No More Hand-Me-Downs: Research Designed for Children

Niños y ESTUDIOS CLÍNICOS

Q:  Are you interested in research opportunities?  Or, looking for more information about Clinical Trials?

A: 
Many researchers post flyers on bulletin boards briefly describing their research along with contact information.  Look for these on bulletin boards in common areas.  In some cases researchers choose to place advertisements in newspapers or on the radio.

You might want to speak with your doctor to find out if there are any clinical trials that may be of interest to you and for which you may qualify. 

Another way to search for information is to check on one of the following websites:

To search for a clinical trial by disease or geographic location, visit:  www.clinicaltrials.gov

For information on cancer research, call 1-800-4-CANCER (1-800-422-6237) or visit:www.cancer.gov/clinical trials

For information on research on AIDS and HIV, call 1-800-TRIALS-A (1-800-874-2572) or visit: www.actis.org

Q:  Are you already a participant in a study and have questions about your rights?

A: 
Call the Office of Human Research Oversight (OHRO) at 309-680-8630 to 1) discuss problems, concerns, or questions; 2) obtain information; 3) offer input; and/or 4) make a complaint.